It's called babycenter.com. They have so many pregnancy support groups.
I posted our situation and these are the responses I recieved.
It's nice to hear from other SB mothers some kind, reassuring news.
I'm so thankful to hear this news, gives me so much hope.
Click the images to make them larger.
Hugs sweet Momma! Our little Aiden has SB also and you are welcome to read his blog www.journeywithaiden.com I cried with you and are praying for you after reading your posts on babycenter. Noah is so lucky to have such wonderful parents that love and care for him so much, he is going to do big things with the help of so much support!
ReplyDeleteHugs. My son Logan was born in November 2016 with T12/L1 spina bifida in all senses of the term. He does not walk (but he is a full time wheelchair user) and needs to wear extensive leg braces at home during his physical therapy sessions too. I have done a lot of research on the lesion levels and there is a lot of variation between the anatomical level of lesion and the function level of the child. My five year old stepdaughter has a L3 lesion but she functions like a true L1 according to his urologist. I’ve also “met” kids with different levels of lower body paralysis, leg function and sensation over the years. You cannot prenatally predict eventual ability. This is a wait and observe thing really. I learned that early on. My son is happy!
ReplyDelete