Friday, June 15, 2012

Breaking SB down into heartbreaking levels.

Honestly, I absolutely hate this picture. I'm not sure how well you can see it.. so I'll try to explain the best that I can. When we found out that Noah had Spina Bifida we were told that his wound was in the lumbar region. Which is a good thing. The lower= the better. The best region is the Sacrum (Lower pelvic region) Another ultrasound confirmed that it's in the higher lumbar region. Our pediatric neurosurgeon said that it doesn't matter where in the region.. as long as it's in the lumbar we're safe. Right now we're looking at L1 or L2. Which means he may be able to walk with assistance but will need a wheelchair for long distances and most likely later in life. Worst case scenario would be T12-L1. Which is definitely wheel-chair bound.. no exceptions.

We don't know anything for sure, but I'm trying to wrap my mind around this region in the best way that I can. It's very hard to tell on ultrasound where exactly the lesion is. We won't know that for sure until he is born. One thing for sure is that it's on the back of his kidneys.. which are low.

In the thoracic region (behind the chest) there is a risk of breathing and lung complications, and his is NOT anywhere near his chest. Thank goodness.

Continuing to pray for some good news soon, but in the mean time trying to not worry.

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