Back to the Hospital we go!

Sorry these posts are so short. It's been 3 months ago since all of this happened and I can't quite remember all the little details anymore and just want to catch up to now :)

Anyway, Noah started fussing and crying non stop. He's not a baby who cries for no reason. He mainly only cries when bored or hungry and other than that he always has a smile on his face. So my first instict was to bring him to the ER for a possible shunt malfunction. So to save time here's how it went.

• Brought Noah into Hospital on Halloween
• We were admitted to a room and had to wait until Monday to talk to his Neurosurgeon about where to go from there
• Monday came- Dr. Sami decided to take him into surgery and take a look at his shunt.
• Surgery happened, no infection, clogs, or malfunctions.
• Dr. Sami sent off a culture of his spinal fluid for further testing.
• Came back positive for infection.
• Noah came back from surgery, stopped breathing multiple times throught the night.
• Next day Dr. Sami externalized his shunt. (Picture below)

• Noah's stomach started abnormally swelling up.
• He was diagnosed with NEK (necrolizing endocitis)
• NG tube (blue tube) was inserted to take out stomach acid
• PIK line was inserted into his juggular to give him nutrients
• He was given 4 different antibiotics to get rid of the infection
• Noah developed 3 hernia due to the NEK
• Once infection was gone, shunt #2 was inserted
• After almost a MONTH in the hospital we were able to leave :)

 

We went to the hospital on Halloween and left the day before Thanksgiving. It was crazy living in the hospital that long but I'm sure glad we decided to take him in and get him feeling better.

 

 

 

Homeward Bound After Shunt #1

 

October 20th

 

After Noah had his first VP shunt placed we left about a week later. He ran a very high temperature at first because his body was rejecting the shunt but we got it under control in the hospital and he was feeling better in no time. This picture is Noah looking out the window in my van on the way home. You can still see the blue mark on his head from his neurosurgen marking what side of his little head the shunt should be on. Sweet little guy was so excited to look around at the bright new world around him. We enjoyed every single moment of having him home. We cuddled and played our days away :)

 

This picture is of Noah's 1 month birthday :) This little guy already inspires me everyday. He's spent 2 out of his 4 weeks of life in the hospital and still smiles all the time. Such a happy little guy.