What Spina Bifida Looks Like To Us

When I was pregnant I was so afraid my child would become
defined by his diagnosis. Instead of a "healthy" baby he'd be associated
as a "Spina Bifida baby" or "Child with a deformity". But the truth is,
he's not that different. He is a healthy baby who
HAPPENS TO HAVE SPINA BIFIDA.
So this blog post is about what Spina Bifida means to us.

 

S: Strength

 

Noah doesn't even realize how strong he's been.

He's gone through 5 major surgeries within 4 months.

We want to raise him to always be able to find the strength

within himself to overcome anything that comes his way.

 

P: Perseverance  

 

Perserverance means steadfastness in doing something              despite difficulty or delay in achieving success.

 

 

I: Inspiration

 

This picture was taken only minutes after his

3rd brain surgery. If this little guy doesn't spark some kind

of inspiration I don't know what will.

 

N: New Perspective on Life 

 

Living in the hospital for a month straight,

seeing your innocent baby go back to surgery time

after time, the nights when he stopped breathing, the ICU stays,

EVERYTHING

has given me and Steven a new perspective on life.

We appreciate every good moment we have.

 

A: Adoration

 

Who ever said "Special" was a bad thing?

Noah is unique and wonderfully made.

We adore him.

 

B: Beauty

 

Beautiful inside and out.

 

I: Independent

 

This one isn't fully mastered yet but he will get

there and learn to be as independent possible.

One step at a time.
 

F: Full of Life

 

Noah is a joy in everyone's lifes he's around.

Always so full of happiness and giggles.

 

I: Incredible

 

This is of Noah smiling for the first time.

Nursing in the NICU with an IV in his head

and heart monitors on. Happy as can be.

 

D: Determination

 

Working so hard in physical therapy.

Getting stronger and stronger each day.

 

A: Amazing

 

 



 I think it's easy to tell that I think my

Son is absolutely amazing. He's the most wonderful

thing to ever happen to me. Spina  Bifida has not put a damper on my love for this little one at all. In fact, it's made him all the more wonderful, inspirational and special.

 

My advice for expecting parents?

Always let your child redifine his or her diagnosis.